Janice's Story

“Believe in yourself. Be kind to yourself. Be your own advocate. Know your disease.”

It was November of 2011.  As palm trees looked over sparkling Hawaiian waters, Janice married her high-school love.  They were ready to start a family.  The pair had recently moved from Texas to the NYC area and Janice finally found her stride as a business consultant with EY.

“I’m so sorry to confirm what you might have been fearing….”  Just 10 days after her wedding, Janice was diagnosed with stage IV (metastatic) Inflammatory Breast Cancer (PR/ER+, HER2-) and the world just shattered.  The 33 year-old newly-wed was told she had just a few months to live.

Wait, what??  Janice was in peak shape - often hiking, running, or completing 150-mile bike challenges for charity (2 years!).  She had no family history of cancer and she had mammograms done every year (not needed until age 40).  And she had been on a planning committee with Komen Dallas!  Janice wasn’t new to breast cancer; or so she thought.  It was the greatest rug pull and none of it made sense.

As it turns out, Inflammatory Breast Cancer (IBC) does not have lumps, can form in weeks, found at stage III or IV, hits young, and affects only 2-5% of all breast cancers, yet accounts for over 10% of deaths.  IBC is a metastatic cancer, typically already spreading beyond the breast at first diagnosis.  For Janice, this meant lymph nodes, chest, and bones.  It is often misdiagnosed due to rareness, as it looks like an inflamed infection, losing precious life-saving time.

Janice reading glamour in front of colorful wall

Through grace, within 2 weeks she was able to have a few critical surgeries to remove 2 liters of liquid from her lungs and have a port installed, start chemo, and then move to Houston to continue at MD Anderson Cancer Center, under the care of one of the world’s experts in IBC.  She got genetic testing and saw a multidisciplinary team covering breast oncology, surgery, and radiation.  Janice spent 9.5 years at MDACC and a year at UCSF, culminating in 11 treatments, radiation, 6 surgeries, and 3 clinical trials.  She had responded well to anastrozole (AI) and palbociclib (CDK 4/6), for 7 years combined.  Other notable treatments were Capecitabine (anti metabolic) and Enhertu (HER2) + Keytruda (immunotherapy).

Despite the mack-truck hitting news, a lot had actually gone right. Janice considered herself a lucky one, having been diagnosed accurately at the start because her first physician in New Jersey recognized it was aggressive and immediately did an in-house biopsy. She was then referred to an oncologist who was able to quickly diagnose the cancer as IBC, having learned about it at a recent oncology conference. Many are misdiagnosed, often due to lack of awareness rather than empathy. (This must change.)

But this was not a passive game, and Janice was intensively active as a partner in her treatment and an advocate for herself -  researching how each drug works and the impact on quality of life, listening to her body, evaluating alternative complementary treatments for side effects, and researching clinical trials.  When the treatment was more stable, she took a risk with her husband Wang and moved to California to be closer to things that sparked joy - in this case, epic hiking trails and outdoor experiences; they hiked Yosemite 4 times.  Later, Janice researched options and opted to enroll in a clinical trial at UCSF, which was local, to avoid extensive travel (Houston option).

Early on, Janice realized she needed to transform her mindset and whole self to co-exist with the incurable cancer, on-going treatments/medications, and side effects.  She pivoted from being a survivor and warrior to the more profound "thriver".  To her, a thriver is able to channel love, optimism, joy, and sparkle from within to enable a life of possibilities and fulfillment, rather than imagery of battles and limitations.

As part of the transformation, she found and embraced yoga to strengthen her breath, body, mind, and spirit.  She lived with monks in the mountains of Korea, learning mindfulness, simplicity, and ritual.  She learned to be kind to herself and to embrace imperfection.  Not stopping there, Janice explored many alternative treatments, most of which had positive effects.  The thriver mindset enabled her to take ownership and it was paying off.

Grateful for the second chance, Janice became a passionate advocate for improving quality of life for other metastatic breast cancer patients. She was part of the grassroots patient advocate team that helped establish MD Anderson Cancer Center's Advanced Breast Cancer Clinic.  While in Houston, Janice was a regular volunteer at MD Anderson. She built awareness and reviewed grants as the Asian community advocate with SWOG (National Cancer Institute supported network that runs clinical trials).  She represented Komen at various awareness events and was featured in the media.  In 2021, Janice was part of an effort that raised over $1.1M to support cancer initiatives at MDACC and was a top 100 fundraiser for many years.  As a certified yoga instructor, she taught restorative yoga to cancer patients.

Above all, Janice was a loving mommy to two Cavachon puppies and an inseparable kindred spirit to her husband Wang.  Not able to have kids, the duo embraced opportunities for world travel and even drove all around the US in a campervan.  She was a wonderful godmother, nature seeker, foodie, artist, music fan, pianist, prankster, unicorn lover, and friend to everyone she met.  She was a selfless colleague and rising IT audit/risk manager with credentials at Asana, Rakuten, Cloudera, EY, and KPMG.  She always had your back and loved to have fun along the way.  When you were around her, all stress just melts away.  Janice was just cool like that.

Janice's spirit lifted in May of 2022, after a trailblazing 10.5-year journey as a metastatic breast cancer thriver.  Wang keeps her star shining bright by paying it forward through a charity that embodies her wishes and philosophy - Unicorn Cancer Thrivers Foundation.  The mission is to improve the quality of life experience for metastatic cancer patients and caregivers, and empower them with a mindset to ascend from trauma to thriving.

Janice's advice to those living with metastatic breast cancer?  This is a journey with no finish line, so find a pace that is comfortable for you.  Believe in yourself.  Be kind to yourself.  Be your own advocate.  Know your disease.  We can all be thrivers.

“This is your journey, but there is no finish line. Find a comfortable pace. Never compare to others.”

Raising a voice

Janice was fortunate to have opportunities to speak out about metastatic breast cancer with awareness campaigns and local media.